Saturday, September 12, 2015

She is My Hero

So the school year has begun and so has the Homework!!! As I'm reviewing my Daughter Devynn's homework I was a taken aback.  The teachers assigned a little questionnaire to learn more about their students.  

My Devynn struggled and disliked school for a longtime before we had her assessed and learned that she had Dyslexia.  She is an amazing girl, and I am proud of her! She is my eldest child and ever since her little brother Donovan was born she has been very nurturing and protective of him.  Even before he was diagnosed with Autism.  

When he was diagnosed, nothing changed.  In fact she became a little more protective.  They're only 1 year and 3 days apart in age.  But the way she cares for him, you would think they were decades apart. She was a huge part of his early intervention.  One of his therapist so to speak. He mimicked her a lot.  

As they got older, she continued to care for him in her way.  I remember going to the park and some kids wanted to play tag. They invited them both to play, and she grabbed Donovan and off they went.  I suddenly hear her telling the group of kids.  My brother is playing.  He doesn't really talk, and he may grab your ears.  He has Autism.  My heart melted.  She couldn't fully grasp the concept of Autism, but there she was educating.  She was Advocating for brother.  

So coming back to her homework assignment.  The questionnaire had a section where you had to name someone who she looked up to or considered a hero.  

It took me a minute for it to sink in.  My heart melted AGAIN!  She doesn't like to write and she has a hard time getting into detail when writing.  So I asked her to explain.  She said "because it's harder for Donovan to do regular things sometimes" 

I ADORE all three of my children!  They are my motivation for striving to make a better place for their futures.  But at that very moment, as I read that answer,  SHE became my Hero!  

Wednesday, August 26, 2015

I Wanted to do it Myself

The other day I posted about my Dono and his new haircut he did all by himself. I  wrote about how proud I loved his need for independence.  While  that same need for independence does indeed make me proud, it also scares me at times.  Especially when my autistic kid wants to cross the street "All by Himself"! 

My mom is generally who minds Donovan after school and during breaks from school.  But she recently fell ill and isn't a 100% as of yet.  So we have our sitter who steps in at other times when I have a meeting and the husband is working, or when the Hubby and I want a date night minding him and my oldest child Devynn while we work.  He is pretty good with minding the kids and they actually get excited when he comes over to stay with them.  

Yesterday he took them to get some pizza for lunch and Dono let go of his grip and tried to go off on his own.  The sitter is really good at telling about the happenings of the day.  Good or bad, and I truly appreciate that about him.  So he let me know that he took Donovan's iPad privilege away for a while.  I was okay with that.  It wasn't the first time he had tried this with him.  

Later that evening when I asked Donovan if he had run away from Ruben, he quickly answered "yeah". When I asked asked why, he answered with "I wanted to do it myself!" 

As a mom, you want to protect your children.  My oldest is 10 and she finally got the hubby and me to break down and allow her to cross the street alone.  I forget sometimes that Donovan is just one year younger than her.  Together with his Comm Hab worker we have been teaching and supervising him while he crosses the street.  Not sure if I will ever really feel okay with him going off alone, but my hope is that one day he will be travel trained in order to travel on his own.  

Again here he is telling me in his own way.  "I Can Do It"   

Monday, August 24, 2015

I Did it all by Myself!!!!!

Sooooo..... Donovan usually has a pretty good sleep pattern.  He didn't always.  With a little help of melatonin and a steady routine he sleeps most of the night. We don't give him melatonin daily.  We give it to him when his pattern is disrupted and we need him to get back on track. This usually happens when school is out. he .... Whew it varies.  Mostly he is up all night and crashes around 6 am.  

Recently we've  had some stuff happen that has thrown off our schedules, routines and environment.  So it doesn't surprise me that he has been an owl!  

When he is up, I'm able to take some naps throughout the night.  He usually raids the kitchen cabinets and the fridge.  He will surf YouTube, Netflix or play with other apps on his iPad. But most of all he is up drawing.  He really can draw, but he is a perfectionist and if it isn't to his standards of perfection, he will crumple it up and toss it.  

We went to bed very late, after 12 am.  I thought the kids were asleep, but I heard Donovan shortly after, turning on lights and running back and forth.  Heard the TV go on and I tried my best to rest as much as possible.  Around 5:30 am I thought I heard the bathtub faucet turn on, but I figured it was the fan, and turned over.  But, couldn't fall back to sleep.  I tossed and turned for a bit.  I finally got up and noticed the bathroom light Was on.  I ran into the bathroom and found hair all over the floor and inside the tub. The tub was full with water.  I was half asleep and I thought to myself, did my husband shave and not clean up? Then I got nervous and thought did Dustin shave the cat?! I started going through the rooms.  And there he was scissors in hand snipping away!  I asked him what he was doing?  And very proudly he answered." I gave myself a haircut.  I did it all by myself!" 

After the initial shock, I began to laugh, and then I was so proud of him.  I love how independent he wants to be.  He is constantly reminding me of how capable he is.  Ladies and gentlemen here is my Donomite's hair cut!!!!!

Tuesday, April 21, 2015

I Want To

She was his first friend and therapist.  She doesn't completely understand Autism, but then again who really does? She has her own struggles, but she worries about him.  They fight and she knows how to push his buttons, but she loves him.  

As a parent we worry about what will happen to our kids, if we aren't around.  This thought has kept me up on many a night.  This one moment will always stay in my mind.  Devynn came to me.  Devynn was 4 going on 5, and she comes and lays next to me.  She asked, "if you and daddy die, I take care of the boys right?" I was stunned.  The thought had crossed my mind.  My response to her was, "we will be here for as long as we can.  I want you and your brothers to love each other so much, that you would always be there for each other, but you don't HAVE TO, take care of them." She looked me in my eye and said "I want to".  

I pray that their bond continues, and I pray that he nurturing soul grows stronger.  I am proud to be her Mommy!  

Sunday, March 29, 2015

Autistic Kids Rock!!!!

Today is the Day!!!!! We've put ALOT of hard work into this event, and I cannot wait to see it all come to life!!!!! 

This evening we come together to celebrate our AMAZING loved ones who are Living with Autism!  Cheers to their accomplishments and to how far they have come!  

This evening we Salute the Autism Moms and Dads for their unconditional love and dedication! 

This evening we take a moment to turn off our propellers and relax a little.  No need to Hover!  

This evening we surround ourselves with people who understand just what we go through and support you.  

This evening their is no judgement because we have walked a mile in your shoes.  

This Evening we let the Bronx and the world know that Autistic Kids Rock!!!!! 

Come out and show your support!!!! Doors open at 5 pm!!! There will be a complimentary Latin Buffet provided by Sabor Borinqueño, drink specials throughout the evening, hookah, prizes, and great people!!! 

Located right by the heart of Westchester Square!!! You can take the 6 train or the BX 21, 31, 4A!!! You don't want to miss it!!!!

Can't make it but would like to donate? Click Here!!!


Saturday, March 28, 2015

Live Love and Laugh!!!!!

Parents are their children's first teachers.  We are they're first example.  They watch us and learn from us.  Even when you don't think they are, they pick up on everything.  How you react to a situation.  How you go into a situation, and what you feel about a situation.  Think about that.  

If you as a parent go into a situation with a negative outlook, they too will become pessimistic.  If you don't try, for fear it won't go well.  They too will develop that same fear. You'll never get to enjoy new things and experiences. 

Having three kids all in a very close age range, can make outings and events a little difficult.  Throw a meltdown in, with a twist of just plain spoiled, it can be exhausting.  But it's all a learning experience that may end up leaving you with an everlasting memory!!!

Think positive, live life like there's no tomorrow, cry because you're laughing too hard, and love like your heart was never broken!  We have one life to live, SO LIVE IT!!!!!! 

Thursday, February 12, 2015

Waiting to Exhale

So many have thanked me for putting together the Challenger League, but i want you to now that I am forever grateful and thankful to you all!  This has been one of my most rewarding and fulfilling moments in my life.  Being able to meet so many super amazing children and their amazing families is hands down top five in my lifetime experiences.  

When I learned of my son's diagnosis, I was mixed with emotions and felt powerless and confused.  I can't say alone, because I had my husband, but we didn't personally know of anyone else diagnosed with Autism.  As we pushed forward we met others who experienced the same heartache, struggles and overwhelming love for our children. 

This hasn't been an easy journey, as a lot of you know.  But it is a very rewarding one.  I have to say that the rewards outweigh the meltdowns and red tape I get tangled up in at times.  All their milestones and accomplishments  are that much more greater, because we know how much they had to overcome to make it happen! 

Last season, when baseball started, I had no idea what to expect, but I went into with the intention of creating an environment where everyone involved was going to get something out of it!  It was and still is important that parents and family trust me and understand that I had only good intentions.  My goal was to make them feel at home!  And to allow them to be comfortable with letting their most precious possession be themselves.  I wanted them to have the same service that I would want for myself and my children.  It's why I take the time to know each child and get to know the family!  

I love talking to parents who are unsure about signing their children up.  They're always sound so tense, but once I start to explain, I hear that sigh of relief.  That exhale.  I look forward to our second season!!!!